A propos de Yuanyou NGO

Bienvenue à l'ONG Yuanyou!

Yuanyou est la première et la seule ONG dédiée aux maladies oculaires rares (Keratoconus, cancers oculaires, rétinite pigmentaire, dégénérescence cornéenne, maladie des manteaux, syndrome d'Usher, etc.) en Chine. La mission et l'objectif de notre ONG sont de :

  • Sensibiliser et à renforcer la conscience sociale des maladies oculaires rares, chez les patients et les médecins ophtalmologistes, mais aussi parmi les gens en général en Chine, sur leurs signes, symptômes et effets.
  • Intégrer des ressources et partager des expériences entre personnes atteintes de maladies oculaires rares, en Chine mais aussi dans le monde entier, et fournir une aide médicale, financière et psychologique spécialisée à ces patients et aux membres de leur famille.
  • Promouvoir la recherche sur les causes, la prévention et le contrôle des maladies oculaires rares.
Yuanyou Salon
We organize activities (mostly online) where ta ophthalmologist doctors (often from some of the best hospitals in China) provide free courses & seminars or diagnosis to patients in a QQ chatroom, or one or several patients with rare eye diseases share their experiences with their rare eye diseases, how they got diagnosed and treated, and how their life becomes afterwards.
Yuanyou Aid
We provide material aid to people with financial difficulties by collaboration with commercial companies. For example, for many poor Chinese, even a pair of RGP glasses is beyond their financial capabilities. We have hence launched a program with LucidKorea to provide a pair of RGP glasses for free for KC patients who live in poverty. Other collaborations to help poor patients are also envisioned.
Yuanyou Connect
The Yuanyou Connect Project is committed to building closer and wider connection between the social public welfare forces and the affected groups, promoting the flow of public welfare resources throughout the society, and helping to make more efficient use of public welfare resources. We collect, organize and disseminate public welfare information from all walks of life, all-round cohesion of public welfare force, accurate positioning of the object of assistance. We help the recipients connect public welfare resources in the simplest and fastest way, while pooling demand and calling for the mobilization of more social public welfare inputs.
Yuanyou Wiki
We have written many original articles to promote the sensibilization and awareness of rare eye diseases among people with vision problems as well as among doctors. Moreover, we try to keep up with the research community and pharmaceutical companies by presenting latest advancements in treatments for rare eye diseases. Furthermore, as many patients don't know where to seek help or even which hospitals to go to, we have written a series of articles on hospitals and experts specialized for treatment of rare eye diseases in China.
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