Call for Usher Syndrome Patients -- Please contact Yuanyou NGO Sep 20, 2019 欢迎无脉络膜症患者跟援友公益取得联系,我们会帮助患者跟美国的 Usher Syndrome Coalition 对接。一起商讨加入基因测试、参与试验型治疗的可能性。 我们的联系方式是:kf@mail.yuanyou.site Usher Syndrome TAs & Contrubitors of this article : Xiaomeng Lunde Chen Next Call for Patients of Choroideremia -- Please contact Yuanyou NGO Previous Receivers of free RGP Glasses in the program of Yuanyou Aid & LucidKorea